Still waiting to schedule...

I spoke with the nurse practitioner again this past Thursday and we are still waiting to schedule Carson's first surgery. She has a few more scheduling details to check.

Good news is that they will be able to combine the relocation of his G-tube site along with the airway procedure. This means we will also have to schedule a clinic visit with the surgeon that will work on the G-tube. This is one thing the nurse is checking on...we are hoping and praying that the surgeon will agree to having this clinic visit the morning of the surgery instead of the day before. It would be awesome if he would agree to do this because that means we would NOT have to get a hotel for one night (which also means we would not need to unload & then reload 'our whole house' as Preston puts it).

Other good news...the suspicious area that they saw on the MRI is likely a hemangioma that Carson has just below his trach. We discovered this only from more questioning, on our part, about the size and location of the 'suspicious' area. We were VERY happy about this...a hemangioma is a cluster of blood vessels just below the skin. These areas typically go away as the child gets older but they are still going to check it out to make sure.

So, this first surgery could include a one to FIVE night stay, depending on how involved the removal of the granulation tissue above his trach is. We will not know this until the actually procedure is performed. Of course, we are hoping for a shorter stay but will be prepared for 5 nights.

We have completely switched over to a new formula for Carson now but he still continues to vomit (probably once a day on average). I just feel horrible for Carson when this happens so often. No one can give us a good reason WHY this is happening. I plan to talk to his dietician in the coming days but we may experiment on our own...less volume or skipping a feeding at night to allow his stomach to empty completely. Who knows.... prayers are appreciated : )

Otherwise...things are going well on the homefront. The boys are getting bigger and bigger. Carson has really started jabbering more in the last couple weeks. And they continue to interact more and more. Kellen motors right along and loves to carry anything he can find (doesn't matter if it three times his size). Carson is getting alot faster, whether it is crawling or running in his walker. They took their first bath TOGETHER today...this was big for us. With Carson's trach, bathing (or anything that involves water) carries many risks. They did really well together and Kellen didn't splash too much : )

We still are working on the art of drawing.

Playing peek a boo with Dad!

I probably should clean my windows because they are ALL covered with fingerprints and face prints : )...they LOVE to watch people come and go!

Our happy boy waving! He loves to wave!

Visit with MawMaw and Aunt Bonnie

Whoa...this is bigger than my tub! (First time in the big bathtub)

First time with bubby!!