update #2 for today

First, Meme (Grandma) Clark is holding Carson today! :) What a joy to get to hold something so precious and infinitely beautiful! We were so excited she got to be here today and hold Carson.

Essentially, after rounds today, everything is the same. Our number one priority is to get him to gain weight. His weight was up one ounce last night to 6 lbs 3 oz. That is the goal and so we are trying to help him have the least amount of work possible so he can gain some chub! Ventilation is the same. Once they figure out the situation with his liver, a possibility is to add olive oil to help fatten him up. :) I love it:eating olive oil! They are considering another diuretic that will help with the calcium in his urine and continuing lasix (his other diuretic). The neonatologist would rather have him on the dry side due to his lungs, but they are watching that closely. Other than that, Carson gets to eat, eat, eat, and rest and that is all he has to worry about.

Kellen is doing great. We hope you all have a wonderful weekend!

pictures!

Little man Carson

Little man Kellen

update #1 for today

Yesterday, Carson had an echocardiogram. GREAT NEWS...it was normal. :) His heart had some hypertrophy or thickening of the muscle in past echocardiograms, but now his heart is normal. YEAH!!! In addition, there were no signs of any pulmonary hypertension. We were very happy to hear this. 

He is still higher on his ventilator settings, but at this point, they just want him to grow more and we will work with the ventilator later. We are still waiting to hear more about developments with his liver and calcium in his urine. Nephrology is consulting for his kidneys and will be getting additional labs over the next few days/weeks to monitor his urine. They believe it is not a serious problem, but needs to be watched. We are just waiting on his liver to get the next ultrasound on Tuesday. They don't believe it is active clotting because his labs don't indicate that, but we are just going to watch and wait. 

Yesterday, after I got off work, I drove up to the hospital to see Carson. It just made my heart sing to see Liz holding Carson and he looked so amazing. His color is better and the swelling in his face is better. He just looked so handsome and content. I was very thankful. We will post pictures in a little bit. 

Last night, I was going to try to help Preston and Liz with Kellen's night time feedings. What can I say, they are so efficient and such great parents, they didn't even need my help. I certainly was impressed. :)

Posted by Sarah