Saturday, November 21, 2015
Surgery rescheduled!
Thank you all for the prayers! We decided to reschedule the surgery yesterday. Carson is feeling better and acts totally normal but still has a runny nose and cough. After talking to multiple people, no one could say with much confidence that surgery would be a 'go ahead.' And we didn't want to make the trip only to be sent home. So we decided to postpone surgery...it was rescheduled for December 9th. As much as we wanted to get this next step under Carson's belt, I think this is best. Just praying Carson is healthy in December...stay warm if you are in this cold front and if you aren't...lucky you...enjoy for us!
Tuesday, November 17, 2015
4th Birthday!
The boys had a great birthday and we had some wonderful weather in the days around it to be able to enjoy the outside...the boys (& my) favorite place!
Please stick in a prayer for guidance and for healing...we are supposed to go to Cincinnati this coming Sunday for a bronchoscopy on Monday (Nov 23rd). Both of the boys have had runny noses, sneezing, and Carson has had a really bad cough the last couple days (I think from all the drainage). I'm planning to call Cincinnati tomorrow to get their thoughts. I just want the best decision to be made, whether we go as scheduled or not, so they can get the most accurate 'picture' of his airway (& thus the best plan for the coming months).
Here are some pictures from their Paw Patrol party!
Please stick in a prayer for guidance and for healing...we are supposed to go to Cincinnati this coming Sunday for a bronchoscopy on Monday (Nov 23rd). Both of the boys have had runny noses, sneezing, and Carson has had a really bad cough the last couple days (I think from all the drainage). I'm planning to call Cincinnati tomorrow to get their thoughts. I just want the best decision to be made, whether we go as scheduled or not, so they can get the most accurate 'picture' of his airway (& thus the best plan for the coming months).
Here are some pictures from their Paw Patrol party!
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| Who knew a bunch of tape could be so fun! |
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| And Flarp produced the most laughs! |
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| 'Egg' races |
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| They played on their scooters the rest of the evening!! I LOVE sunsets! |
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| Poppy and his grands! |
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| Blowing up balloons for C & K's actual birthday morning |
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| LOVE!! |
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| Check out these big boys! |
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| They are sure growing up! |
Wednesday, November 11, 2015
11.11.11
I'm so thankful for today... playing at the park, going down slides, running, playing in leaves, eating cupcakes before we ever had lunch...
11.11.11 ...Four years ago, Carson was going through a life saving surgery (his body was shutting down because of a 2+ pound teratoma on his neck). It was a miracle surgery...no one knew what the outcome would be but we were all praying. He went IN to surgery with facial features that you could hardly recognize and came out battered and bruised but with all those sweet, perfect facial features in place (complete with a 'butt chin' just like his daddy and Kellen)! I thank the Lord for the surgeons and nurses that day...those that took care of our baby when we couldn't. I'm so thankful that we've had four years with Carson, his joyful laugh, contagious smile, and all his silly antics. We didn't know what was in store for us (& thank God because it has been rough at times) but the joy overcomes it all! God truly knows what we need when we need it. One of those being Kellen...not just a brother but a twin who can support Carson and ground us in only a way a child can! Sometimes we have to wait days or years to see God's plan (or maybe we will have to wait to ask him face to face on some) but we CAN put our total trust in God and just focus on finding joy in each and every moment!
Thank you to so many of you that have prayed for them since their birth (& even before)...I will never be able to thank you all enough for the support and love that have been showered on our entire family!
P.S. The boys had a wonderful 4th birthday...it was a beautiful day to celebrate (I'll get some pictures posted soon.)
11.11.11 ...Four years ago, Carson was going through a life saving surgery (his body was shutting down because of a 2+ pound teratoma on his neck). It was a miracle surgery...no one knew what the outcome would be but we were all praying. He went IN to surgery with facial features that you could hardly recognize and came out battered and bruised but with all those sweet, perfect facial features in place (complete with a 'butt chin' just like his daddy and Kellen)! I thank the Lord for the surgeons and nurses that day...those that took care of our baby when we couldn't. I'm so thankful that we've had four years with Carson, his joyful laugh, contagious smile, and all his silly antics. We didn't know what was in store for us (& thank God because it has been rough at times) but the joy overcomes it all! God truly knows what we need when we need it. One of those being Kellen...not just a brother but a twin who can support Carson and ground us in only a way a child can! Sometimes we have to wait days or years to see God's plan (or maybe we will have to wait to ask him face to face on some) but we CAN put our total trust in God and just focus on finding joy in each and every moment!
Thank you to so many of you that have prayed for them since their birth (& even before)...I will never be able to thank you all enough for the support and love that have been showered on our entire family!
P.S. The boys had a wonderful 4th birthday...it was a beautiful day to celebrate (I'll get some pictures posted soon.)
Monday, November 2, 2015
Halloween & upcoming Birthday for now
Oops, I forgot to get an update on here when we got back.
Carson was a rock star once again...other than a few tears because he is smart enough to realize what is going on right before surgery. He was his normal happy self. We got to stay at the Ronald McDonald house again which is so wonderful and so convenient (it is right across the road from the hospital). The bronchoscopy was a quick procedure (after a short delay on surgery time). I think Carson's airway looked about like the doctors expected at this stage after a reconstruction. His airway still had some swelling and inflammation around the vocal cords, which they said was expected. And, in Carson fashion, his airway, of course, is NOT typical. I think the surgeon used the word 'torturous' meaning that it is NOT a straight, wide open shot. It has some curves and twists which is due to developing with a teratoma and then also because of the original resection of the teratoma. And there are still areas that are 'floppy' and not as rigid as we would like but they also were quick to point out that the airway does not need to look pretty or normal, it just needs to be functional. It is still a wait and see game...in baseball terms, they are still waiting to see if they hit a double or a home run with the reconstruction surgery. Let's pray for that HOME RUN!!! We will go back again on Monday, November 23rd (the week of Thanksgiving) for another bronchoscopy, to further evaluate the healing and airway. Carson's first words after surgery (in the PACU) were "I want to go see Kellen...I want to see Nana and Kellen." Love that sweet boy and his positive spirit!!
We got home early evening on Friday and then got to have a wonderful Halloween weekend with family!
Carson was a rock star once again...other than a few tears because he is smart enough to realize what is going on right before surgery. He was his normal happy self. We got to stay at the Ronald McDonald house again which is so wonderful and so convenient (it is right across the road from the hospital). The bronchoscopy was a quick procedure (after a short delay on surgery time). I think Carson's airway looked about like the doctors expected at this stage after a reconstruction. His airway still had some swelling and inflammation around the vocal cords, which they said was expected. And, in Carson fashion, his airway, of course, is NOT typical. I think the surgeon used the word 'torturous' meaning that it is NOT a straight, wide open shot. It has some curves and twists which is due to developing with a teratoma and then also because of the original resection of the teratoma. And there are still areas that are 'floppy' and not as rigid as we would like but they also were quick to point out that the airway does not need to look pretty or normal, it just needs to be functional. It is still a wait and see game...in baseball terms, they are still waiting to see if they hit a double or a home run with the reconstruction surgery. Let's pray for that HOME RUN!!! We will go back again on Monday, November 23rd (the week of Thanksgiving) for another bronchoscopy, to further evaluate the healing and airway. Carson's first words after surgery (in the PACU) were "I want to go see Kellen...I want to see Nana and Kellen." Love that sweet boy and his positive spirit!!
We got home early evening on Friday and then got to have a wonderful Halloween weekend with family!
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| Ryder (Preston), Rubble (Carson), and Marshall (Kellen) |
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| Our three pups (Rubble, Marshall, and Skye) |
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| Beyond cute! |
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| With Mimi, Papa, and Meredith |
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| They were quite the trio! |
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