Tuesday, November 11, 2014

11-11-11 Our miracle day!



Today is the day we celebrate miracles! Three years ago today, Carson had the surgery that would save his life. So, in his life, today is almost as special as his birthday. I was in my hospital room at a completely different hospital waiting for calls from Preston to let me know how the surgery was going. Carson was three days old and he was fighting for his life. We know we witnessed a miracle, not only from what we could see with our own eyes, but when we later read the op note and the first line said, “The parents are fully aware that this baby may not survive.” When we talked to medical professionals that see the sickest of babies and they said, “We weren’t sure he would make it.”  We know that Carson’s life was spared and it was purely by God and the abilities that were given to several amazing surgeons. Not only was Carson’s life spared but the surgery went better than many expected. Today, most people wouldn’t know he was born with a neck mass that was larger than his head, a mass that completely distorted his facial features. I’m not sure why Carson’s life was spared when some aren’t but I do know I will thank God everyday because our lives have been so richly blessed by this sweet boy!

I just wanted to share this special anniversary with you all because so many of you were in prayer with us three years ago and so many have continued to pray with us since then. Muah!! <3 <3

Monday, November 10, 2014

THREE years OLD!


Carson and Kellen are 3!!! We made it another year! These two little guys are sure growing up…you can see it in their looks, in their speech, in how they play, in their behavior (ok, maybe not, it wasn’t so much the terrible two’s for us but I think it’ll be the terrifying THREE’s). Carson is only 30% tube fed now as I said before, compared to 100% a year ago, neither one has their binky now, Kellen is potty trained through the day(Carson occasionally seems to be interested-last night he went three times in a row : ), etc. I love watching them grow up, especially in the times when they are getting along, when they are just playing and laughing with each other : ). There are so many blessings of having twins and especially in our case. Kellen is such a good brother and has a heart that’s only full of love for Carson (even though it comes out as orneriness sometimes). Carson loves to just love on Kellen (whether Kellen likes it or not). They learn from each other, they push each other (literally and figuratively speaking), but most importantly they know there is someone that has their back!

The boys had a wonderful birthday! Kellen told me he liked the cupcakes and opening his presents the most. Carson said his favorites were the orange truck balloons, a card he got from MaMa that plays a honky tonk song, and the cupcakes. Did you hear that, Carson said one of his favorite things was food (it doesn’t matter that it was chocolate on chocolate or that he only ate the icing)! This was the first birthday that Carson even ate any of his birthday cake. Only two years longer than I thought but all the more sweeter!

If you ever question the power of prayer or whether miracles really do happen, just look our way (& don’t be afraid to remind me either : ). In so many ways, Carson is developing just like a typical kiddo even when some doctors didn’t know if he would make it and his care required TWO NICU nurses around the clock. We have come from requiring almost around the clock home nursing when we came home to only having it 4 nights a week. Now I worry more about “Do the boys have friends and do they act age appropriate?” “Will Carson ever be potty trained” “Do the boys know how to count, put their clothes on, hop, skip, etc.? Are they similar to same aged peers?” as compared to “Is Kellen eating/growing?”, “Will Carson be safe through the night? Do I hear the alarm, should I go in to check on him?” We have come from Carson being connected to so many tubes/monitors you couldn’t count them all to times now when he can sleep with no tubes or monitors attached. It is hard to explain but there are so many times that I go in to check on Carson before I go to sleep or when he is napping and I just thank God, that he now sleeps so peacefully. I think this year has really shown us that we can live with a trach and have a lot of fun! I say ‘WE can live with a trach’, because Carson already had that mastered, it was really just us that needed to adapt.  He has had the trach his whole life (well 3 days in) so he knows NO different and is the happiest little man you’ll ever meet. 

Here are some of the pictures from their birthday and party.
The boys woke up to a BUNCH of balloons thanks to Poppy and Daddy!


They LOVE balloons!

Trucks & Mud Puddles!


The boys' first try at breaking a pinata!


Ellie had the touch!





Enjoying the cupcake!

Carson too!!



These were the cards from MaMa that sang to them!

Mimi & Papa's present to the boys

They thought they needed an all terrain vehicle

Carson looks terrified! I hope this is not his face in 13 years : )


Our giant balloon frisbee





Truck painting!

The birthday was fun but TODAY, I think was a gift, straight from God, for me…it was a pretty day (despite the wind) before the cold weather hits. The boys and I spent the morning outside (we had no need for timeouts or “Quit hitting”’s).  We went to the park and ran and laughed and tried to catch the falling leaves. If you’ve never tried it, you need to! You can’t help but smile and laugh. We came home to eat lunch and I asked the boys if they had fun this morning. Carson said he liked laughing! He said, “I laughed, you laughed, and Kellen laughed!” Laughter is such a beautiful gift! I wish I had more pictures from this morning but my stupid phone chose that moment to not have enough storage to take pictures, even though I deleted at least 10. So you’ll just have to imagine our morning at the park with the fall colors, sunshine, and two little boys' laughter and smiles!



Thank you so much, as always, for the love, prayers, and thoughts sent our way!

Wednesday, November 5, 2014

WE'RE BAAAACK! (as a bunch of M&M's)

We FINALLY got internet! : ) Preston is thinking we made need to disconnect it again because I have made about 10 transactions in the past week. ; ) What can I say...I haven't had internet for over two months and I've been waiting to buy lots of stuff until we did (for the house, for the boys' birthdays, etc).

We had a wonderful (but cold) Halloween! Our family dressed up as M&M's, Meredith was a tootsie roll and Margo was a pig (1 of the 3) : )


The boys were so excited that Ellie came to trick or treat with them!

I've never seen a cuter yellow M&M

Our little family of M&M's


And the whole BUNCH!

The boys had a blast even though it was so cold!!

The boys sure love Margo and Meredith!
Checking out all their loot with Poppy!

I just love this picture! Not sure Ellie was taking it all in but the boys were sure telling her all about their candy (KitKats and Smarties)

 We've been busy the past couple months with getting moved, finishing up with lots of little jobs on the house (but let me tell you, I have a very talented and hard working father-in-law and husband...I'm so thankful because they have done some really good work around the house), trodding through all the mud - especially after the rain showers, trying to figure out how to get a good routine of cleaning a house twice as big as the last one (actually, I've just given up and realized I can't : ), etc. I'm confident we will eventually get some pictures up on the walls but I'm guessing it won't be for awhile : ) Preston finally just said, 'make me a list,' there are so many little jobs to be done that we can't remember all of them.

Thank you so much for the continued prayers! I feel like we are on a roller coaster with Carson's feeding (sometimes we see big improvements and then we hit a lull and then sometimes seem to go backward) but we are still trudging along. I know some of it is just me too, sometimes I just want it to be easy and unfortunately, it just isn't. So then, it is a matter of finding that extra energy to keep plugging along, keeping each meal time as fun as possible while still working on ALL the things that need to be addressed. AND, if I can keep things in perspective and look at the bigger time frame, we have made huge strides. A year ago, Carson was still 100% tube fed and now he only receives 30% of his nutrition through his tube. THAT is encouraging! : )

Here are several pictures over the past few months!
Taking a lunch break with Daddy and Papa

Daddy's helper

They both LOVE to help!

Looks like Nana might be enjoying this game the most : )

We did this over and over and over!

Now it's Poppy's turn to have lunch with the boys! Poppy was very good to come down several times to help hang fans and wire in some of the switches

Carson and Kellen's first Stoddard county fair! The both agreed that they had to ride the train first!
Now for some pumpkin carving!

HELLOOOO in there!

The finished product! (No, we do not make the boys always wear their helmets, although it isn't a bad idea)

We now have two cats, Stripes and Bubba! The boys love them and are really good about helping with their food and litter box.
Decorating our Halloween cookies! Yummmy!

The boys think it is so special when THEY get to hold Ellie!

That smile says it all!

The whole group got in on bedtime stories!