He has also had a wonderful day! No leaking from the G-tube and lots of smiles. With his Passy Muir valve, he is making A LOT more sound. His primary nurse, Christi, who has been amazing through the entire journey, got a video of Carson making lots of noises. We will have to post it as soon as we get it from Liz. Christi and I were both so excited to see him vocalizing so much. It was precious.
It is somewhat surreal to think about visiting Carson somewhere besides Cardinal Glennon, but we will all rejoice when he is safely at home with his family. We will always have truly grateful hearts for all the fantastic doctors, nurses, and staff at Cardinal Glennon, who have made this journey home with Kellen and Carson possible.
Posted by Sarah
