Unfortunately, we did not see immediate results or improvements in Carson's vomitting with this therapy. If hoping, praying, & wishing something would work could do it, this therapy would have worked : ( When I spoke with the therapist over the phone and during the sessions, any improvements/changes should be seen immediately...SO, although I was REALLY hoping this might work, I still don't regret going and we will just take the next step next.
I do ask for more prayers...for possible late effects from the therapy &/or a miracle in that Carson would stop puking. With his continued vomiting (which tends to only increase with travel & different routines), he has lost MORE weight (not good!) If surgery is what we need, I'm ALL for it but I'm still praying that we could possibly avoid it. I'm concerned that there is more to the reason he throws up so much...I know having a full belly all the time does not help matters but I also know that at times this isn't the cause. I'm sure part of it is behavioral in the sense that Carson thinks throwing up is a normal part of life - too bad I can't explain that it is NOT! And secondly, having a trach doesn't help because it causes him to cough more. Anyways, please continue to pray for weight gain and our decision making process for the next step.
As always, THANK YOU for your prayers for all the details in Carson's life and prayers for his health and safety overall! We definitely cashed in a few prayers last weekend. We arrived at Mom & Dad's house late Friday night...long story short we did not need to suction Carson for over 14 hours (which has NEVER happened before). This was from the time we left our house in Dexter, overnight, until the next morning. We discovered at about 8 am Saturday morning that his suction machine was not working properly. We had NO suction power. For a child with a trach, this could be life threatening because suction is needed to clear the trach/airway of secretions. God was watching out for us and for my sanity. I called our medical supply company when we realized our suction was not working (thinking that someone could just meet me at the store in Springfield and give me the needed part) only to be told that they are NOT open on Saturdays. "Are you kidding me??? My child could die!" The man could only advise me to go to the ER. Anyways, we drove into Springfield and after two tries found a medical supply store that helped us find the proper replacement part. I may have added a few wrinkles and lost a few hairs with all this but Carson never knew any different and his health & safety were NOT compromised! Thank you God for this small miracle!
We also were blessed with safe travels to & from Minnesota! The boys actually did really well during the trip with only a few melt downs. Thank you Jim, Michelle, Marissa, and Katelyn for opening your home to us on such late notice and for the delicious food and wonderful hospitality! We thoroughly enjoyed our stay!!!
I forgot my camera but here are a few pics from the trip!
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| Experiencing their first hotel room together on the way up : ) |
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| The boys both LOVED Angel! Carson would jabber the ENTIRE time...talking to Angel! |
| If Angel was out, the boys were right by her...they may have added a little stress to her life |
| Who knows what Carson was saying! This is back at Nana & Poppy's in the same little tyke car I played in with Josh : ) |
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