THE Plan!

I just spoke with a nurse practitioner from the Aerodigestive Center with Cincinnati Children's. So...good news or bad news first??

Well, some potentially bad news...they found a 'suspicious' area on the MRI that is just below Carson's trach and could be residual teratoma. Although, I just don't believe it is residual teratoma, she said they will just take a closer look with the first procedure and remove it, if necessary. But other than that, we had good news about the results from the impedence probe (which measures reflux). The study was normal : ) That is a WELCOME word. So this means that his reflux is within normal limits so NO need to do a fundoplication (another surgery to tighten the sphincter between the esophagus and stomach). More good news...all biopsies and samples taken during the procedures last week were negative! So the next procedure will be to remove the granulation tissue just above his trach site, investigate this 'suspicious' area, and hopefully relocate his G-tube. The nurse is going to check to make sure we can relocate the G-tube with these other procedures. That way he will not need to go under general anesthesia an extra time and will eventually be able to switch to a G-button (which is lower profile). She will call back next week to confirm that we can. We are hoping to schedule this first procedure within the next couple months!

I know I say this alot but thank you for the prayers! So many have already been answered and I KNOW we have many more miracles to come!

Here are a couple pictures from the past week!

The new favorite vantage point...this time watching the unexpected snow fall!

Playing outside!

Oooooo...that's cold!

It wasn't very windy so we got to take a walk too!

Happy Birthday to the best Daddy in the world! : ) We had a chocolate, chocolate, chocolate cake!

This is last year...it was SO nice to have both boys with us this year!