November 11th is always a day we celebrate because it’s the day Carson’s teratoma was removed and his chance at life became real. 11 years ago now! Also, officially when he got his trach.
This year, 11/11 was HIS day again…Almost full circle (closing up the stoma), the stars aligned (as the doctor said), prayers were answered that
- The doctor agreed to squeeze in the stoma closure procedure during his follow up scopes even though there wasn’t technically OR time. And,
- A bed was available. Hospitals are overloaded with sick kiddos right now so they've even had to cancel elective procedures but a bed happened to be open because another kiddo ended up not needing the stoma closure that was scheduled. So Carson got THAT bed! We had no idea that beds were so hard to come by but SO thankful it worked out!
If this hadn’t worked out, we would have had to wait until January to have his stoma closed (November 11th was the only day even slightly available). It already seems smaller, so praying it heals up quickly now!
Carson did great and I sometime will do a post just about the RMH but it seriously has made all the difference and helped Carson look FORWARD to going to Cincinnati!!!
Carson says his stoma is a little sore from the procedure but not awful! We will go back in 3 months for a follow up scope and a pulmonary appointment. So thankful to have this step done but still have a couple trips within the next year to make sure CPAP is doing it’s job and his airway is acclimating well to bring decannulated! So proud of Carson each and every trip!
Carson was pretty groggy & sleepy after the procedure
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| Puppet man...a craft was what got him going, otherwise I think he would have slept into the night |
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| On our way out in the morning...never too early OR cold for ice cream! |
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