We are back home and back to our normal activities for now but we will kick off September with another trip to Cincinnati. Monday's scope went fine...but wasn't the best case scenario. All in all, just another bump in the road. His airway still looked okay except for the granulation tissue in a couple spots that had grown since the t tube was removed. In one area, the granulation tissue had grown from the front and back wall of his airway, meeting in the middle. This had to be removed and the airway was dilated. Overall, the airway is still staying open sufficiently, as long as no more granulation tissue invades. They wanted to take another look to double check. So another scope is scheduled for Sept 2nd. This was a prime example why they do these repeat scopes. Granulation tissue is not hard to take care of...a bit bloody but not difficult, but if you don't catch it quickly it can become a thicker, harder to manage, scar band.
One step at a time, staying focused on the positives, and thankful that Cincinnati is only a car drive away (although, I'll be ready to stay home for awhile or take trips purely for fun). Carson and Kellen have been troopers through it all. Kellen loves to come support his brother and to take in the playground and craft room at the Ronald McDonald House despite the long drive. Just a quick plug for Ronald McDonald Houses (Cincinnati or elsewhere)...they are truely a gift, a REALLY bright spot in what otherwise would be a gloomy trip (for the whole family)! This one has given the boys something to look forward to and not only that but it gives us a chance to meet other families, whether it is a shared story, offering or receiving encouragement, or just seeing other kids with trachs (because let's face it...we feel a bit isolated in the small town USA when it comes to trachs). But at the RMH no one looks twice (unless its to say, "Hey you have a trach too!") and Carson doesn't have to answer those "What's that?" question a hundred times. So when you see those collection boxes for change or soda tabs...they do benefit a REALLY GREAT place!
P.S. Don't get me wrong, questions are great, in fact, they are welcomed but I know it is a relief for Carson to just feel like one of the kids also.
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| Walking across the Ohio River. A huge perk now...we can stop by and see Uncle Josh in Louisville!! |
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| Oh, Ronald! |
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| My hero...ready for surgery! |
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| Home sweet home! Smiles and energy abound even though this is the evening after surgery. |
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