YAY!!! I got a call this morning from Cincinnati that we are down for Carson's first surgery Thursday, March 14th. This is actually earlier than we thought and will work out great because Carson should be recovered for Easter! This first surgery will include removal of the suprastomal granulation tissue (just above his trach), as well as a lingual tonsillectomy (removing excess tissue at the back of his throat). They are also teaming up with GI & General Surgery to close Carson' current Gtube site and will relocate it. This means that he will eventually be able to switch over to a button (a lower profile tube) as the new site heals, which also means less care required for us and less tape & 'stuff' on his belly.
SOOO...let the prayers begin for safe travels, good health leading up to the surgery for Carson and all of us, for the surgeons that will be working on Carson, and for ALL the other little details that go into traveling with Carson.
Please also be praying that Carson continues to get better. We are going on a week of Carson being sick : ( he is getting better slowly but surely. It is just amazing (& sad for Carson) but what is only a runny nose and very slight nasal congestion for Kellen is a full blown sickness for Carson. It is hard to understand what this is like for a child with a trach. It means, at times, suctioning his trach every 10 to 15 minutes, him not getting to wear his Passy Muir valve because his secretions get too thick, him coughing REALLY hard, and him not sleeping well which means Preston (or whoever is staying up with him at night) does not get much sleep either. Anyways, please be praying that he continues to feel better. He is now able to wear his valve for a few hours a day. You can tell he likes to have it on because he can then make noise : ) I think it is so much worse for Carson simply because when Kellen is exposed to a virus (say it is through the air) he inhales it through his nose & mouth, where Carson inhales it into his trachea so it starts out being deeper simply because of the entry point, if that makes sense. No doctor has ever explained it to me like that but it makes sense to me.
Here are some more pictures from the past weeks. Happy belated Valentine's Day also! We had a wonderful night...I made filet mignon, along with the sides, for Preston (Mom helped too : ). It turned out very well...Preston even commented at different points "I've had a lot of steaks and this is definitely one of the best!" "I think this is the best meal you have ever made me." I am so thankful that one, Preston is easy to please when it comes to food : ) but he is also very appreciative of the food I do make.
 |
| They LOVE books! (especially the one that has wheels : ) |
 |
| ...and 'Spot' books |
 |
| ...and the whole box of books! |
 |
| Papa's new contraption...HORSE rides! The camera's battery died before I got pictures of Cowboy Kellen |
 |
| Trying out the mohawk (thanks to Aunt Ra-Ra - that's Sarah) |
 |
| Kellen's 'do |
 |
| Kellen loves running around without his clothes on...who cares that it is February?!? |
 |
| Valentine's Day meal! I had some of the best Valentine's! |
 |
| Checking out their personalized Valentine's Day cookies all the way from Kansas! What a sweet sweet gift! |
No comments:
Post a Comment