Maybe the most exciting news…Carson had a ‘time trial’
without oxygen on his 7 month birthday and he made it 1 hour WITHOUT any
supplemental oxygen. In the past
he made it only a few minutes before his oxygen saturation fell below 90%. We
were thoroughly impressed! We also received good news from his last
appointment…the alpha fetoprotein (tumor markers) dropped from 22 to 15. The chest X-ray also showed lung
improvement overall but there was still some residual inflammation in his left
lung, which may be from a slight cold he had or just from the damage caused
from early on. We just ask
everyone, if you are so inclined, to really be praying in the next month for
healing of Carson’s lungs and airway because the procedure scheduled for July
18th will play a role in determining when decannulation (removal of
the tracheostomy) is scheduled. If the bronchoscopy shows healing and
improvement, there is the possibility of discussion of decannulation earlier
(not exactly sure of the dates). However, if he still has a lot of
tracheomalacia (lack of rigidity of the windpipe), obstructions, and signs of
lung damage, they will probably postpone any discussion of decannulation for
quite some time. We received his surgery pictures from Dr. Yang, and they
reminded us again of the TRUE and AMAZING miracle of Carson’s life and progress
thus far and the power of prayer. We are praying for another miracle with the
healing of his lungs and trachea. Thank you for joining with us. We know the
reason Carson has done as well as he has is due to all of your prayers and the
mercy and love of our God. We hope all of you are having a blessed summer and
enjoying the beauty of God’s creation!
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