update #1 for today

I got to go visit last night and loved seeing Carson and Kellen.

For the good news first, Kellen is in clothes!!! :)  Yeah...it was a blast getting to see him dwarfed in an itty bitty outfit but looking so handsome. He is taking the full feeding for his weight so no IVs or anything other than his tube to his tummy. Elizabeth and my mom have both been able to get him to eat his full feeding from the bottle (35 ml). That is wonderful. If he is awake he does great. I also got to hold him for the first time on his 1 week birthday yesterday. I tried to feed him a bottle but I didn't have the touch. He definitely decided his mommy was better at feeding. :)  Kellen thinks both his parents are the best b/c he is happiest when they are holding him. He has the cutest facial expressions and just will sleep for hours in your arms.

Liz and Preston continue to be such strong people as they go through the ups and downs. They are amazing.
Your prayers are so wonderful and we so appreciate it. Carson's bleeding stopped last night and he continues to pee incredibly well. Unfortunately, to stop his bleeding they had to give him a medicine to help him clot which was good for him, but caused the machine to get more clots in it. One of the clots is on the arterial line after the oxygenator. It is very scary for all of us, because it seems awfully easy for that to transfer on to Carson and potentially cause devastating results. The neonatologist, pediatric surgeon, perfusionist, and others are trying to figure out the best way to address this. I want so badly for him to be off the ECMO machine, but they still feel his lungs are filled with fluid. Right now, we need to pray for wisdom for the doctors and for them to make the best decision for Carson and to be able to work together. Continued prayers for protection for his little body. On a happier note, he is moving more and is really using all his extremities and will really grab your hand if you touch him. It is such a sweet sight.

Prayer Points:
First, in thanksgiving for all the miracles and answered prayers thus far, for Liz and Kellen's amazing recovery, for Liz and Preston's ability to take it one day at a time
Requests:

1)  For the doctors to be able to come together to make the best decision for Carson, wisdom for their decision making process
2)  The clots will not move and God will hold his Hand over Carson protecting him from any of the scary side effects
3)  Thanksgiving and continued prayer for Carson to pee pee pee so we can get fluid off his lungs and he can come off the ECMO machine.

Posted by Sarah