Miracles!

As always, I meant to update sooner but haven't gotten to a computer. 

Carson had the surgery Thursday to my surprise but not only that, the doctor called from the OR during surgery to let us know they were going forward with surgery and he said "This is the BEST Carson's airway has looked in 2.5 years!" He went on to say that although it looked much more open he still felt some intervention was necessary but not a t-tube or a stent. When all was said and done they did a vocal cord lateralization on the right (plus a little more) through an incision. This is SO MUCH less invasive than they were planning with follow up care much less. So he still has the same size trach, we will follow up in three months. Dr. Cotton will still be here! More or less we will just have to see how long it takes for the swelling to dissipate (which is a little longer for Carson typically because alot of the lymph nodes and vessels on the right side were removed with the teratoma so long ago.) Right after the surgery, Dr. Cotton remembered my question from last September and made a point to tell me, "I feel very good that we will get his trach out eventually!" All. of . this. is maybe the best news we've had in a long time!!! We were over the moon...many happy tears were shed! 

Our excitement was dimmed for awhile because the first day/night were rough for Carson. Even though it was a much less invasive surgery, it was still surgery and still has a recovery time. He had a lot of pain at his neck incision and wasn't able to pee afterwards - even though he had a full bladder. They ended up having to cath him to relieve his bladder yesterday morning : ( so we were back to praying for pee (like we did 7+ years ago in the NICU). He did eventually go pee afterwards but it wasn't without alot of burning and pain. His neck pain improved A LOT after we re-situated his trach...they had it pulled to the side with the ties. We also were able to start Toradol for pain. As long as he is able to tolerate eating and get enough calories, we will be able to leave Sunday after they take out his neck drain.

I hope to get back on here soon and share the many layers of this trip and the way God worked.

As I've told many people, I know & believe God is good all the time - even in our low moments but it feels SO nice to be on the side of good news this time! Thank you for the many, many prayers!!!

"I remain confident of this: I will see the goodness of the Lord in the land of the living." Psalm 27:13 (even a little more confident now ; ) Haha!