Friday, March 29, 2013

More good stuff...

We have continued to do well at home...Carson is doing really well, appears to be gaining some of the weight back, has only thrown up 3x since we've been home (which two of those times were somewhat induced by us - on accident), he continues to willingly put food in his mouth (still not eating any volume but tasting ALOT more!), and the pathology report came back on the small mass they removed just below his trach. It WAS a hemangioma...so NOT residual teratoma, which was GREAT NEWS!

Please do be praying for his G-tube site. Although it is not leaking anymore, it is not healing like I would like to see. We have tried a couple different things to get it to heal but so far, really no luck. It has an area that I believe is skin breakdown but the spot it is in, is difficult to dress or treat with anything.

Kellen is doing really well...eating more and more and is in to EVERYTHING! He is SO passionate about life : ) The boys have also been interacting more and more...giving hugs randomly, helping each other out, sharing, or NOT sharing, occasionally pushing, pulling, and hitting but still everything that is NORMAL (such a wonderful word : )

We have been able to play outside the last three days and the boys just LOVE it! Looking forward to the spring weather and more time outside!

Other things that we could use prayer for is in deciding whether or not to pursue a surgery for Carson's slow gastric (stomach) emptying or look elsewhere for possible treatment. Since he isn't throwing up anymore, I have a really hard time willingly putting him through ANOTHER abdominal surgery. However, the surgeon said a G-button (the lower profile tube) may never work as long as he has a problem with emptying his stomach. Decisions, decisions....

Much thanks to everyone for the prayers...I'm waiting expectantly for an Easter miracle with his G-tube : ) Happy Easter to everyone!
LOVING the wagon ride!

Carson is supposed to be asleep but he is talking and playing instead : )

Kellen worked really hard to pull Carson on the horse! SO funny!

Part of our Easter egg coloring crew! (Mimi hasn't been feeling good so she is sporting the new look : )


Carson's turn...

...and his response after the applause was TOO much for him.

"Ooooooo!" Kellen was SO excited about dropping the eggs in...

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