I can’t believe we are nearing the end of August. The Clark
boys are continuing to be the joy of our lives…brightening our days with
smiles, laughter, chatter, and Kellen’s new squealing! Carson is becoming more
and more vocal and his babble sounds more and more like Kellen’s. This is a
huge step because he only has one vocal cord (the right vocal cord’s nerve was
severed with the removal of the mass) and his tongue and lip movement is not
typical (again this is just an effect of nerve damage during surgery). Carson
continues to sit really well and is improving on his standing balance, wanting
to pull to stand with assistance, and is doing better on all fours. We continue
to work on his feedings by mouth, which is one of the more frustrating aspects
of his care. He originally would take a bottle, but since coming home he
stopped doing that and does not do very well with spoon feeding. We believe
some of this is due to oral defensiveness or aversion, meaning that he doesn’t
do well with objects or food in his mouth. He gags VERY easily, sometimes even
if the food is presented at his lips. But I believe the bigger issue is that
his swallow function is not normal. He doesn’t swallow as frequently as he
should and it also is not as effective. So prayers for this are greatly
appreciated!!! We have follow up appointments on Thursday in St. Louis. I
expect these appointments to go well. Carson broke 20 pounds this week and
Kellen is holding steady at 18.5 pounds.
Kellen is SO much fun to watch explore everything. The
keyword is WATCH : ) because he gets into everything and usually the things he
is not supposed to. Overall, he is a really great little boy. He is much more
content now that he can move around by himself. He is also doing much better
pulling up on things and also lowering himself back down. He is starting to
taste more table foods but we are concerned because he has yet to develop his
taste for vanilla ice cream…can this be??? A Bunch and a Clark that does not
like ice cream??? He seems to like chocolate better than vanilla.
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