This week has shown some progress, which is very encouraging for all of us. Carson weighs 15 lbs 3.5 oz and Kellen weighs 14 lbs. Carson’s pediatric trach came last Tuesday. It is slightly longer than the neonate trach he had. When Carson saw Dr. Costa, it was found he had more tracheomalacia (floppiness to his trachea resulting in the trachea closing off with each breath). After we changed to his longer trach, Carson seems to be doing better. He has rested really well and the last few days has required about 1 liter less oxygen on his trach collar than he has in the past few weeks. We were all encouraged with this. In addition, Carson and Kellen seem to have taken off with chattering and talking to anyone that will listen. It has been music to all of our ears. We continue to ask for prayers for protection over Carson’s little brain and body. There continue to be many situations that could be problematic for him, and we just pray for wisdom for all that are involved in his care to keep him as safe and healthy as possible. Carson has developed another bump on his chest that doctors believe is a hemangioma. His tumor markers are down, but it is concerning to us that he now has three of these bumps on his chest. We have a nursery check-up at the NICU at Cardinal Glennon in about 2 weeks for Carson and Kellen. We plan to talk to Dr. Cerny, the neonatologist, about the situation with the bumps. So far, no one is exactly certain of whether to be concerned or not. From our research, if they are hemangiomas, it really isn’t a big deal unless they continue to grow in size. Every day has brought blessings from these two boys and we continue to be completely amazed at all God has given us. Thank you again for all your prayers. We also want to wish the boys' great-grandmother Florence Hermesch a happy birthday! It is our first without her here on Earth, but we know she is praying intently in Heaven.


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