Carson and Kellen have had another good week! Carson weighs 14 lbs 5.5 oz and Kellen weighs 13 lbs 8 oz. Carson is still blowing Kellen away with the weight gain challenge, but both are gaining which is the important piece. We are trying to use Carson's passy-muir valve more often, because it normalizes his breathing and to help with speech development. However, it can't be worn while he is sleeping so it seems to go off and on since Carson is the king of cat naps. First Steps (which is Missouri's Early Intervention Program) started with Carson this week. He will receive Speech and Physical Therapy once a week. Carson has not been doing very well with a bottle so we are going to attempt rice cereal and see if he does any better with that. It would be very nice to get some sort of nutrition by mouth so the G tube can be removed. And our amazing pediatrician stopped by the house yesterday to take a look at a rash Carson had as well as a small bump on his chest. The pediatrician thought the rash was just heat rash, but gave us something to prevent yeast, because of the high humidity and heat being blown onto that area via the trach collar. He believes the bump is a hemangioma... Carson has one other one on his bottom, so we will just keep watching those. They are benign unless they continue to get larger and troublesome from the standpoint of size. Typically, they grow for the first year of life, so for right now we are just going to watch it. Carson has had his tumor markers drawn, but we still don't have the results yet. Once we have those, I think we will all feel a little better about the nodule on his chest. A praise...Kellen finally pooped with only assistance from apple juice (we've been having several day periods without any bowel movements)...I know, I know...the things we get excited about : )
Prayer requests...
1) Improved feeding by mouth for Carson...so we can eventually remove the Gtube
2) Continued healing of Carson's body...lungs, the respiratory infection, and no tumor recurrences
3) Guidance of the therapists that will be working with Carson to find ways to help him and us as much as possible
4) Improved digestive tract motility for Kellen : )
5) Continued prayer for good nurses for Carson
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| Telling Mimi a story... |
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In honor of Great Grandma and Grandpa Hermesch
and Uncle Ferdy |
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| Proud Daddy |
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Carson: "What just a minute Mom...I'm not ready"
Kellen: "Let's just get this over with" |
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| Mimi and Papa Clark |
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| All smiles...He wasn't as happy after the KU win last night! |
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