update for the week

It has been almost a week since Preston, Liz, Carson, and Kellen made it home. There have been some real ups and down, but we are beyond proud of Preston and Liz and how well they have handled the transitions. If they did not need sleep, everything would be wonderful, because they truly are as well-prepared for emergencies as anyone could be.

We thought the nurses who would be staying with Carson would be trained and able to provide his care...especially during the night (similar to those we had in the NICU). Unfortunately, this has not been the case and none of us feel comfortable leaving Carson to their care unless someone is awake at all times. We are trying to work through these issues, but we ask for your prayers. We certainly need God's direction as to how to go about providing the best care possible for Carson. 

We continue to pray for healing for Carson's lungs. Everything else is perfectly normal, but it truly can be an emergency if he loses his oxygen or plugs off his tube. Continue to prayer for clarity of thought when Liz and Preston are faced with emergencies and need to make quick decisions for Carson and for all the rest of us who spend time with him. 

Bottom line, we know God works miracles and we continue to pray for the miracle of God's protection for Carson until he is fully healed. 

Here is one of the sweetest pictures of both boys sleeping together in the living room. They are precious beyond words.

Posted by Sarah