Well if anyone knows of a school bus for sale...the Clark's may be looking for one to buy to carry the needed equipment for Carson. No...I'm just joking. We had training today on some of our home & travel equipment. We will definitely have an entourage and I think we will limit the amount of traveling but it is definitely doable and MUCH better than if Carson was still on the ventilator.
Carson had another good day. He took 70 of 90 mL on both of his bottle feedings. He tolerated 15 minutes on the Passy-Muir valve 3x today. We heard a few little noises (which just melted my heart) but we believe he is losing a fair amount of air through his stoma site. Meaning not as much air is going through his vocal cords and out his nose and mouth so he isn't able to make as much noise. We are going to consult with the ENT on this.
Kellen continues to do well. He is now taking Zantac to help with reflux and I do think we have seen some improvement!
Please continue to pray for a smooth transition home (with home equipment and nursing and...specifically the 2 1/2 hour drive)
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