Thank you for your prayers and support. Carson had a good day on trach collar for his first full 24 hours. They are going to keep him on trach collar as long as he continues to do well. He is using between 25 to 30 % oxygen, so very close to room air at 21%. His carbon dioxide was a little higher on his blood gases today, but the physicians are not concerned. He was also pretty upset when the blood gases were drawn, so that can make a difference.
He passed his hearing screen today. I was unaware, but the ECMO and medications he was on in the beginning have an increased chance of causing hearing damage. But so far, there are no signs of hearing damage. He will be screened yearly until he gets to school-age.
Tomorrow will be a big day (Valentine's Day) as they will trial a Passy Muir valve for the first time. This will be the first time for Preston and Liz to hear his sweet voice (probably going to be crying, but they will still love getting to hear him). They do not believe he will tolerate the valve very well in the beginning, but being able to hear him will be a sweet present for the two of them and all of us.
AND...drumroll please...the tentative discharge date for Carson from the hospital is Feb 28th!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Hip hip hooray. This is if there are no setbacks and no changes. They have a lot of planning to do before he is discharged with getting home health nurses trained and set up, medical equipment ordered, CPR training, passing his car seat test, G-tube not having any leakage and the list goes on. Be praying for guidance for truly competent individuals to be caring for Carson at home.
We are all very excited!!!!!!! Thank you for your prayers!!!!!!!!!!!!!
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