Today has been somewhat discouraging for Preston and Elizabeth. They have been so faithful through this journey, and I cannot say how proud I am of them. Please be praying for continued strength and peace for them, because it has been a challenging week. 

The neonatologist told them today that he felt Carson would go home on a ventilator and would continue to require his tracheostomy. Our prayer has always been that Carson could go home without even a tracheostomy. However, none of us expected for him to have to go home on a ventilator. It will be incredibly limiting to have a ventilator. This was really difficult news to hear for all of us. The doctor did not say he guaranteed a ventilator and trach, but felt Carson would have them. We are praying Carson can prove the physicians wrong again and God would continue to work miracles in this situation. 

Carson did take two bottles today and did well with them. His rate was weaned to 22 on his ventilator but they still have not weaned pressures. Sometime today, Dr. Yang and the neonatologists are going to talk about what to wean. 

And finally, they have moved the care conference up to Friday, so please be praying for this important meeting between the doctors, nurses, and Liz and Preston. 

Kellen continues to do very well.  

Posted by Sarah