Care Conference update

The care conference was very positive in our opinion. Dr. Yang does not think Carson will require a ventilator at home and will be able to wean off before leaving. Hip hip hooray : ) They are thinking several weeks to get off the ventilator, then a few weeks on CPAP and try a trial on the trach collar. But Dr. Yang does think he probably will need a trach collar at home. We are going to keep on praying for a miracle and no need for ventilator or trach. The neonatologist feels differently though and thinks Carson will need a ventilator. 

Today, they were able to wean his rate on his ventilator to 16. The plan is to get to 12 on the rate and then start on the pressures. We feel more confident with Dr. Yang's assessment b/c he is the surgeon that removed the mass and has been there the whole time. Brain, heart, kidneys, and intestines look wonderful. He still has a clot in his liver which they are monitoring. He will probably need to be on Lovenox for 6 months to prevent any worsening of the clot in his liver to be on the safe side. 

They do think he will outgrow all his lung problems by the time he gets to school age, but we just have to wait to see. So all in all we are very very happy. We feel all the doctors and nurses are on the same page. We just need to keep praying for miracles for his lungs! 

Thank you so much for your prayers! We are beyond grateful for all the truly caring, loving people that have blessed us and all our families along this journey.