update for today

Carson is doing well. He had his tracheostomy changed by Dr. Yang today and tolerated it well. He got to go down 1 on his PIP which is the peak inspiratory pressure today. He went down one yesterday so we are thankful and his blood gas this morning was good. They also started nebulizer treatments for his lungs to try to help. He is being changed to feedings every 2 hours rather than continuous. If he refluxs at all, he goes back to continuous feeds. But so far, he is doing great. They are trying to get him to more of a normal feeding schedule. 

Preston, Elizabeth, Carson, and Kellen took their Christmas pictures today. YEAH!!! We can't wait to see them and will post some pictures when we get them. Carson got to wear clothes for the first time today in his pictures. He wasn't very impressed with clothes because he slept the whole time, but he sure looked cute. He also is doing fantastic with range of motion with his neck. He has been able to turn his head all the way to the right which is a huge improvement from past weeks.

Kellen won't go home before Friday, but we believe it will be at least Monday before he goes home. He is doing well, but sometimes has drops in his heart rate. They don't like to send them home until it has been a week without drops in heart rate unless they go home on monitors.

Exciting news, someone donated St. Louis Blues tickets to the NICU. The charge nurse gets to pick out who gets them. They offered them to Elizabeth and Preston, because of how much everyone loves the two of them. Preston and Liz are off to the game right now. I am so happy they are getting away from the hospital to do something fun. 

Have a wonderful Tuesday night!

Posted by Sarah