Carson did very well today with his eight hour trial of trach collar. Elizabeth spent the day with him in the hospital and was very pleased with how he did. Tomorrow, the plan is for him to be on trach collar for 10 hours and get a blood gas afterwards. We are so very proud of him. 

He did alright with his feedings, but continues to have difficulty with leaking at his G-tube.  More to come on possibility of surgery as the week progresses. 

Kellen is getting ready for his surgery on Tuesday and is giving us lots of laughs as usual. 

Happy Super Bowl Sunday everybody! 

Saturday update

Another good day on the trach collar. Carson had it on for six hours today.

Unfortunately, his G-tube keeps leaking. The doctors are discussing the options, but it looks like Carson may be having another surgery late next week. Kellen will have surgery on Tuesday for his hernias and then Carson later in the week.

For Carson, they probably will do a bronchoscopy to look at his anatomy and how it is healing in his throat, revise his G-tube, and check his hydrocele/hernia. We shall see what the doctors decide. It will be a setback, because he will go back onto the ventilator. However, the doctors do not believe it will take long to get back to where he is now on the trach collar. We will update more as we get more details.

Rainy weekend in St. Louis, but so much fun to be with family. GO MIZZOU!!!

Yay!

Carson had a fantastic day. He was on trach collar for 5 hours and did FABULOUS!!!! His blood gas had a carbon dioxide of 62, the same as last time. Tomorrow, he gets to use the trach collar for six hours. 

Also, he took his entire bottle today...first time ever while on trach collar. They actually put him back on the trach collar for his second bottle of the day, because he did better with the trach collar than CPAP.

Thanks for praying everyone!!!  Have a great weekend!

great job again, little one!

Carson did well again with his trach collar trial for two hours. He weighs 9 lbs 14 oz, so he is gaining weight which is fantastic (considering his G-tube leaked and he is working harder to breathe). Tomorrow, they will let him do trach collar for 4 hours (9 am to 1 pm) and check a blood gas upon completion to see how he is tolerating the trach collar. We are so proud of him.

So far, no more leakage from his G-tube. 

Kellen's surgery to repair his hernias is scheduled for 2 PM on Feb 7th, so be praying all goes well.

Carson with his trach collar
for the first time

Hip hip hooray!

Carson got to trial the trach collar for 2 hours! 

What a sweet and precious boy. Liz said he did very well and did not notice any changes while he was on the trach collar. He will have another 2 hour trial with it tomorrow. Friday morning, they will get a blood gas to make sure he is doing well on CPAP and his trials with the trach collar. 

Let's be praying together that the blood gas looks great!  

Thank you so much!

blood gas update...good news!

Carson spent 29 hours on CPAP and had a pretty good blood gas at 5 am this morning. As a result, the doctors are going to keep him on CPAP for now. If all goes as planned and he tolerates this well, tomorrow from 10am to noon, he will get to trial a trach collar with oxygen. Very exciting!!!!!!!!!! 

We will just keep praying for his ability to breathe and tolerate less assistance from machines. His G-tube has not leaked today which is another answer to prayers.

Praise the Lord!!!

Carson's carbon dioxide after his 12-hour trial of true CPAP was 58!!! That is within the acceptable range, so the doctors decided to continue with true CPAP for the rest of today. At 5 am in the morning, he will get another blood gas. If he has a good blood gas, he will stay on CPAP. 

Thank you Jesus! 

Even better, if it is good, they will consider starting to wean him to the trach collar. We are so thankful and excited. 

Be praying for his lungs to continue to heal and him to keep doing as well as he is. His chest X-ray had not changed from the last one, so still some chronic lung disease. His G-tube did not have any major leakages today, so that is wonderful. 

We will see what tomorrow holds, but so far, this has been excellent news.